Profile
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| User: | belle_marmotte (8077838) |
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| Name: | belle_marmotte | |
| Bio: | ME awareness week is upon us once again. 21 years and still hoping for some respite... The short version; Sexy, witty, yarncrafting, silversmithing,  Loves: blue sky, sunshine, my Dad's roast dinners with all the trimmings, flowers, anything that makes me laugh... and Bob. Hates: custard, or anything remotely custard-like, wheat/barley/rye/oats and all gluten containing poison, chronic illness. The very (very) long version; I am a veteran *sufferer* of Myalgic Encephalomyelitis (ME), I have had an ME diagnosis for 21 years, following an unfortunate encounter with the EB virus when I was seventeen. There is practically no ME 'treatment' out there I have not tried. This was a costly experience, both emotionally and financially. Consequently I have no time for unscrupulous "therapists" making fortunes from vulnerable sick people with this 'mystery illness'. I have a dim view of the psychiatric community's take on ME. I believe anyone who suggests that people with chronic illness are 'stuck in an illness mentality' should be boiled alive in hot oil. For purely educational purposes, you understand. ME is not a mental illness. Trust me, I know what I am talking about. I'm a psychologist. When it comes to ME research I'm all about the biomedical. So what else about me... I have hypermobility syndrome and arthritis in both hips, from years of untreated subluxations, (partial dislocations), and an unhealthy interest in sporting activities from my non-disabled days. **LATEST NEWS** the arthritis seems to have spread its evilness to my right knee. Oh joy :| I am also a coeliac (or celiac if you're American) and I have Gilbert's Syndrome. These are the least of my problems. I'm a wheelchair/scooter/crutch and cane user, on a regular basis. I'm in pain a lot, yet frequently undermedicated. Most days I choose to trade off pain for cognitive function. That said I am a 'victim' of nothing. I consider myself to be simply unlucky in becoming ill. Other people have other misfortunes heaped upon them. My contact with other disabled folks has taught me some powerful lessons in counting my blessings. I see myself as part of the wider spectrum of disabled folk. These are my people, with whom I feel most 'at home'. I have zero tolerance for able-bods who display ignorance and/or contempt of disabled people's needs. I am frequently a ranty crip. A fact oft reflected in my journal. My various diagnoses may be what I have, but they do not define who I am. I am the real life partner of the over-achieving, hyperactive deafie ![[info]](http://p-stat.livejournal.com/img/userinfo.gif){kind=small} super_hypero, my very own Mr wonderful. Together we make a powerful team, as well as being a travelling circus of 'special requirements'. I have spent the last seven years of my life studying psychology. When not engaged in academic pursuits I am an avid yarn crafter, something I attribute to being the grandchild of two Weaver grandmothers. I have a serious yarn habit and my stash is a joy to behold, but a pain to house. I'm a some-time francophone. I am open minded and generous of spirit. I am something of a people person, and find everyone amazing in their uniqueness. I don't like to whine about how unfair life may be and I limit the duration of my pity parties. I love sunshine and laughter, the countryside and nature. When I was able I gardened organically. I love my computer. I owe the internet a lot; it gave me friends to confide in when I was unable to go out and meet other people IRL. It's also how I met the man of my life. My journal is nothing spectacular but just a place to share with those who may care to stop awhile and read. I'm currently trying to lose weight...   Create your own visitor map! Progress so farMy Weight Chart:   | |
| Memories:: | 67 entries | |
| Interests: | 13: art clay silver, asl, cfids, crochet, deaf, french, french cinema, horticulture, jewellery making, knitting, myalgic encephalomyelitis, open university, silver smithing | |
| Friends: | ||
| Mutual Friends: | 40: __musicbox, _chaotictears_, acelightning, ankhorite, augusthime, belle_marmotte, braunie, bunny1981, cherokeepurple, cinder_elephant, dahliablue, dartle, dorianeldritch, ebolajez, ever_smaller, glowy_lovers, greyeyedeve, ill_elle, jehannamama, julierosa, kirstygold, ltlpengy, mariz, metalgypsy, mind_travel, misswyoming, nonamoose, oddnut25, old_hedwig, paraxeni, pawpower4me, presley3233, rickybuchanan, sergernewbie, silverfeatheruk, spade_grrl, sunshine_babyu, suzeesque, wheeliefree, zylpha | |
| Also Friend of: | 5: island_rose, lady_selina, lucys_child, madam_silvertip, ugly_toys | |
| Member of: | 34: acrylicsanon, advanced_knit, anti_bad_terps, anxietyover25, brit_knits, cfids_me, chroniccrafters, crochetcrochet, day_on_earth, deaf, diy_pads, dot_gimp_snark, ehlersdanlos, french_films, gimpgirl, hiddendiseases, knitandcrochet, knitters_rants, knitting, knitting_chat, knitting_review, livejournal_uk, me_cfs_severe, no_pity, nocturnal_knit, open_university, panic_disorders, polite_crochet, silverclayart, sock_knitters, team_ankh_2008, thecreativecafe, vaginapagina, vintage_meat | |
| Account type: | Basic Account | |
